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Posted 2 Months ago
julie72
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Hi,
I have just joined this group in the hope that someone can give me some info regarding the following?
I found a lump in my breast a couple of weeks ago - a sort of thickened mass. I have no family history of breast cancer, but I did have a fibroadenoma removed when I was 17 (I'm 35 now).
I had a mammogram done and it showed up to be clear, however they wanted me to have an ultrasound - this I had done and although they could see the lump they said it looked like little cysts, but said they were 95% sure it was ok, but recommended a needle biopsy.
I had this done, but when I got the results they said that they found some "suspicious" cells, labelled as CT4? Or was it B4?
They said this didn't mean that I have cancer, but it also doesn't mean that I don't either.
They have now referred me to a consultant to probably remove the lump.

I am worried sick about what is going on here, and although I know that it is all speculation until I know categorically what is going on, I have trawled the internet trying to find out any info regarding this "suspicious" cells from a biopsy, I have only found it in relation with a mammogram that was not clear, whereas mine appeared to be?
I have also been told that sometimes needle biopsies taken cells out of "context" with the surrounding area, therefore showing that something is wrong when it could just be "irritated cells".
I was a bit too upset at the time to think clearly to ask questions when the doctor spoke to me about this, so I was wondering if anyone can give me any info regarding this?
He also said that the chances of it being breast cancer is now 20%.

Any information would be greatly apprieciated. (I've also posted this as a topic under the breast cancer section - not sure what I'm doing!!)

Many thanks and best wishes
Julie
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Posted 2 Months ago
footprintsangel
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Hi Julie, Welcome to the family! Please go and have it checked care of if you can. 6 months after my mammogram(clear just fibroid tumors) I wanted it checked away and I am glad they did. I did have some cancer and it was removed. That was 2005 and I am glad I stood up and made them check it. Yours might be nothing at all, But please dont let them wait. I am very glad they a caring for you. Just know they are pretty well right all the time. So stay strong and follow you inter self, Good luck and let me know how you are doing. My prays are with you, Angel hugs, Debbie
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Posted 2 Months ago
julie72
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Thank you so much for replying. I'm going out of my mind at the moment, as I'm sure you can understand. I've got a little boy, who isn't even 2 and the thought of anything happening and him being without me is unbearable. I'm trying not to jump ahead of myself at the moment, but it's difficult.

Am so glad though that you have had yours sorted out - that gives me hope too.

Much love
Julie
xxx
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Posted 2 Months ago
footprintsangel
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Hi Julie, Every time you think that, Stop and say, I am going to win! And if it helps put a sign up saying it and reminded yourself you are going to win for yourself and your family. I told alot of people that when I went in for surgery,I will not let anything stop you from winning. God bless you, I will be in touch with you to fined out how you are. Tough times never last, But tough people do! My mirror saying. Angel hugs, Debbie
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Posted 2 Months ago
belle
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i hope you get things sorted soon that waiting and worrying is harder than the drs probaly ever realize.
look after yourself and think about who you need around you and what you need 4 you.
my thoughts are with you and the best thing i believe is believing you are strong enough to cope with what ever is ahead and just taking one day at a time.
sending you hugs and lots of positive thoughts.
belle
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Posted 2 Months ago
footprintsangel
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Hi Belle, Good to see you online, I love the support and love this line shows for each other. God bless you for being here to do that. Please Julie let us know how you are doing. Belle and Julie hope you know you are being prayed Everyone take care Thanks, Debbie
Anyone on line that needs a hug.....................There you are!
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Posted 2 Months ago
julie72
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Hi all,

I went to the hospital today for my alleged appointmetn with the consultant to discuss the removal of this lump and they got me gowned up for another mammogram - with no knowledge of anything the doctor had told them.I wish I had kept my mouth shut, but I told them what had gone on (as in I had a mammogram, ultrasound and biopsy done privately), and then I was taken in to see a consultant who told me that I should have waited as I have gone and done things out of context (?). Then told me that is is potentially serious with a C4 result on my biopsy. THEN tells me that I can't have another mammogram as it would be too much radiation, but because I haven't got the films then they need to look at them first. Then they told me that they would have to do another ultrasound and then a further biopsy but also said although they could do those today they won't as they want to look at the mammogram first!Despite my asking to have it done today they refused insinuating that had I not done anything privatley then they would have done!They then give me appointment for the 24th!! Saying that I request my mammograms from london and bring them then!! I pointed out that the doctor had faxed them all the stuff and asked that I be seen today by someone who would discuss where to go from here, but they were having none of it,, and told me I would have to start from scratch, but they weren't prepared to do anything until they had seen the mammogram, even though she said that the biopsy stated that there could be something serious going on.She also confirmed that I have a further lump that I didn't have last week. I left feeling very upset and fed up. I told my husband, steve and he phoned them up and tried to get things moved forward, and have thankfully now given me an appointment for Monday providing I can get the mammogram films, so they are being sent up from london recorded delivery tonight, so I hope they turn up tomorrow or friday. So as you can imagine, I am not feeling very happy tonight. I can't believe that I have made everything worse by trying to get stuff sorted out, and I can't believe that they are basically penalising me by trying to get the initial stuff done privately). As soon as I told them that their attitude changed completley (and I'm not imagining it).

When Steve finally got them to change the appointment they made a big deal of saying "well the consultant will have to cancel something now to fit me in", so you can imagine the reception I am going to get on monday.

Am trying to remain positive, but feel very confused and upset at the moment.

Hope everyone else is having a better day than me.

Love to all
Julie
xx
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Posted 2 Months ago
footprintsangel
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Dear Julie, Hang on to those good thoughts and I will be praying for you and the dr. That all that is done will help you win. You must remember that many people have been in your shoes, Me one. Take care, I am fighting to so please remember we cant give up. Sending you alot of positive vibes and hugs, Debbie
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Posted 1 Month, 4 Weeks ago
footprintsangel
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Dear Julie, When you can you please email and let us know how you are? I Know can be a very strong person and beat this. Please take care. Along battle but you are not alone and we have been there. God bless you, Debbie
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Posted 1 Month, 4 Weeks ago
julie72
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Hi,
Thanks for the mails. I have spent the last two days doing an arts market (I make jewellery). I thought about not going, but I'm glad I did, as I feel a lot more positive.
I was speaking to another one of the traders who has just got over breast cancer and she was really supportive and helpful, and has made me feel a lot better.

I still don't know for sure as to whether I have this or not yet, and I hoping to God I do not, but I can't do anything at the moment but wait - I know that.
I have got the core biopsy on monday and will then have to wait a further 7 - 10 days for the results.

Will keep you posted.
Much love and many thanks

Julie
xxx
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Posted 1 Month, 4 Weeks ago
footprintsangel
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Dear Julie, Thanks for letting us know, I am glad you are staying busy. I will pray that you will get good news Monday. Take care,Hugs, Debbie
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Posted 1 Month, 3 Weeks ago
footprintsangel
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Hi Julie, Have been thinking about you and how you are doing, I know I was nervous til I found out. God bless you as you wait You are in my prays,Hugs Debbie
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Posted 1 Month, 2 Weeks ago
julie72
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Thanks Debbie, I must admit I am swinging between panic and thinking "what will be will be". Hopefully will find out one way or the other tomorrow afternoon. Will let you know as soon as I know.
Thanks for your support
Julie x
Last Edit: 2008/11/16 15:29 By julie72.
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Posted 1 Month, 2 Weeks ago
julie72
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Thanks Debbie, I must admit I am swinging between panic and thinking "what will be will be". Hopefully will find out one way or the other tomorrow afternoon. Will let you know as soon as I know.
Thanks for your support
Julie x
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Posted 1 Month, 2 Weeks ago
footprintsangel
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Julie, You Are very welcome, I am senting you positive vibes and angel hugs, I wish you the best in your news and know you can make it with alot of people on your side. Hang on to your dream to win, Cause I know you can! Hugs, Debbie
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Posted 1 Month, 2 Weeks ago
julie72
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Bad news I'm afraid. It is cancer - grade 3 and already 19mm. They said it is fast growing and aggressive.
They have scheduled me in for an op to remove the lump plus all my lymph nodes on the 3rd december, but they dont' know as to whether it has spread or not.
They say the normal cut off point for increased risk of spreading is 20mm and it is already 19mm but they said that it could be bigger.

I genuinely don't know what to do. They said it was very unusual for someone of my age and no family history to get this, but they said that it would be rare for it to have spread at this point. However because it is "unusual" in the first instance I can't help thinking that in that case it must have spread.
Especially since I have had loads of weird symptoms for the past few months that the doctors couldn't pin point.

I have then got to have 7 months of chemo after the op and then radiotherapy.

They can't tell me what my chances are until after the op.

I also can't help thinking that if it is fast growing and grown this much already this quickly then waiting another 2 and a half weeks for the op is only going to cause more problems?

To say I am gutted is an understatement. I had a bad feeling about this from the off, but I guess you always hope that your instincts are wrong on thigns like this. I just hope that the fear I have about it spreading doesn't turn out to be correct as well.

I spent most of last night and today in tears and am finding it very hard to get a grip of anything at the moment. The thought of leaving my little boy (21 months) is breaking my heart. I am thinking am I going to be here by Christmas and all sorts of things.
I know I should be tryign to think positive, but I am finding that impossible at the moment, and don't know where to turn.
It all just doesn't seem real, but I know it is.
xx
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Posted 1 Month, 2 Weeks ago
footprintsangel
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Dear Julie, I am stage 3 and mine came on in six months. I had my surgery in 2005 And I am still loving life. I had my nodes checked and they thought it looked good. I just had 6 months of high chemo. I would make meals in the freezer and but alot of easy things to make. I also made my couch up to a bed and put my things up so you can reach them. Do you have a shower seat, I put beside the tub and in before I left so I could rest in the shower as I washed. There is a cancerlife line that I called for support maybe you can find something like it. Dont feel bad crying its a way to get the stress out. If you have a church or good friend, Please talk and I always said I am going to win! And so are you,(For your child) God bless you and keep you strong. Gentle Hugs, Debbie Keep emailing me I love to know how you are
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Posted 1 Month, 2 Weeks ago
footprintsangel
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Julie, Try going on "natural healing" on lines.
The Wellness Community 888-793-9355
National Womens Health Information
center 800-994-9662

I have info online here and hope this will help you too. I will check the line I have many phone numbers for help. Debbie
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Posted 1 Month, 1 Week ago
footprintsangel
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American Cancer Society has a pamphlet on Nutrition for the person with cancer and has alot of info.www.cancer.org
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Posted 4 Weeks, 1 Day ago
footprintsangel
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Hi Julie, My thoughts and prays are with you, Please take care and if you have time let me know how things are going, I know you can good thinking and your taking care of yourself. God bless you and hope to hear from you soon. Take care, Debbie
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Posted 4 Weeks, 1 Day ago
julie72
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Hi,
Sorry I haven't been in touch for ages - been hectic here trying to sort stuff out. Long story, but cancelled op for last week as I wasn't happy with how the hospital were doing things, and I am now having the op done tomorrow with a surgeon I trust and am happy with, so feel 1000 times better than I did before!

Will update you as soon as I am able.

Best wishes
Julie
x
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Posted 4 Weeks, 1 Day ago
footprintsangel
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Dear Julie, Thank you for letting me know, I really hope that everything goes very smooth and I will hear some very good news. I will also be ready to help you as a breast cancer sister to get threw anything we get. But I know Gods hands will guide them and help you to get better. I can not wait to hear about the surgery. God loves you and so do I! Take care,Sister in BC Debbie
Last Edit: 2008/12/07 17:15 By footprintsangel.
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Posted 3 Weeks, 4 Days ago
footprintsangel
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I am praying for you Julie, and alot of others are too, Hope you are doing well. Hang on an know you can do it, Praying for you, Debbie
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Posted 2 Weeks, 3 Days ago
julie72
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Hello,
I got my results back and it hasn't spread - to any of my lymph nodes or to vascular system - thank God! I am so relieved and very grateful.
I am still sore after the op and having to have fluid drained every so often from where they removed a couple of the nodes, but apart from that, everything is fine.
They are still recommended chemo and radiotherapy as a precaution, but I think I am going to not have the chemo. Not sure about the radiotherapy as yet, but I think the chemo is so harsh to go with as a precaution. My surgeon is a lovely man and isn't pushing it and said that I have to weigh up the pros and cons.
I will be having an appointment with an oncologist in the new year and my surgeon says due to my results he may well say that it isn't in my interests having any further treatment anyway at the moment.
I am putting in to place many things to change my lifestyle also as I believe that these things don't just appear on their own and all the amount of surgery, chemo and radiotherapy isn't going to stop anything coming back if you havent' got rid of the cause so to speak, and I think I need to concentrate on that in the first instance.
Like I say, I am so very grateful that it hasn't spread and that the surgeon managed to remove all of it (in his words), so very pleased.
The downside is that with all that has been going on I have been very disorganised regarding Christmas, so am now running round like a headless chicken trying to get it all sorted!

I hope things are going well with you? How did it go with the docs - were you seeing them this week?
Love and hugs
Julie
xxx
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Posted 2 Weeks, 3 Days ago
footprintsangel
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Hi Julie, I am so happy for you! That is the best new I have heard this week. Yeaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaa!Thank you Lord! I think of all you have been threw and now it sounds like its going to be easier to take care of because of no spreading. Please take care and like I said I am so happy for you. Good news is a good healer! Take care, Debbie
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Posted 2 Weeks ago
footprintsangel
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Hi Julie, I am still so happy the results were good. How are you doing threw this stormy weather. I hope everything is going good for you and you are safe. Merry Christmas, Debbie

PS If you need a friend email me anytime.
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Posted 1 Week, 6 Days ago
footprintsangel
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Hi Julie, Thank you for answering my email, I am very glad you are doing ok. Merry Chistmas and Happy New year too!
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